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EUROPE BIOBANK WEEK 2020
November 17-20, Virtual Conference
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Discussion forum -
Europe Biobank Week 2020
Topic -
Topic 4: Disease-based biobanking: paving the way for improved clinical practice.
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Poster:
33
Visits:
155
Title:
Opendataclinica as a platform for the exchange of open data from clinical studies
Authors:
Patricio Araneda , Heinz Nicolaiheinznicolai@med.uchile.cl&8237;56 9 8662 3603&8236;
Centre:
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OPENDATACLINICA AS A PLATFORM FOR THE EXCHANGE OF OPEN DATA FROM CLINICAL STUDIES
Patricio Araneda
Thread initiator
Subspeciality
Reg:
10/17/2020 6:14:00 PM
Comment# 1
I invite healthcare professionals to open debate around the issues raised in my poster, both those relating to research and to clinical practice.
Comment added on 11/6/2020 1:31:00 PM
Trynke De Jong
Subspeciality
Reg:
11/5/2020 5:15:00 PM
Comment# 2
Dear authors,
Very interesting poster (and related to ours, PO52. We also started to work in a postgresql system).
My (non-registered) colleague is wondering with how many individual datapoints the system is operating (and for how many patients/participants is this)?
In what way do researchers get access/work with the data? Do they get it per participants or for all participants?
What does the released dataset look like?
What metadata is provided?
Thanks! Trynke
Comment added on 11/17/2020 10:44:00 AM
Trynke De Jong
Subspeciality
Reg:
11/5/2020 5:15:00 PM
Comment# 3
One more ;): Could you tell us more about the Machine learning routines on demand
Comment added on 11/17/2020 10:45:00 AM
Patricio Araneda
Thread initiator
Subspeciality
Reg:
10/17/2020 6:14:00 PM
Trynke De Jong wrote on 17/11/2020 10:44:00
Dear authors,
Very interesting poster (and related to ours, PO52. We also started to work in a postgresql system).
My (non-registered) colleague is wondering with how many individual datapoints the system is operating (and for how many patients/participants is this)?
In what way do researchers get access/work with the data? Do they get it per participants or for all participants?
What does the released dataset look like?
What metadata is provided?
Thanks! Trynke
Comment# 4
Thanks for your comments.
We initially worked with a court of over 400 prostate cancer patients. Our platform allows a large number of Case Report Forms with variables defined by the researcher and according to the needs of the registry.
The complete information is allowed only to medical users within the registry. This includes the treating physician.
However, the general data is available to all users of the platform as long as the informed consent allows it.
All information is available in JSON format and we are currently working on generating customised reports.
Best regards
Patricio Araneda
Comment added on 11/17/2020 3:07:00 PM
Quoting Trynke De Jong
Patricio Araneda
Thread initiator
Subspeciality
Reg:
10/17/2020 6:14:00 PM
Trynke De Jong wrote on 17/11/2020 10:45:00
One more ;): Could you tell us more about the Machine learning routines on demand
Comment# 5
we are currently working with the doctors on the measurements needed and to define the machine learning routines.
Comment added on 11/17/2020 3:10:00 PM
Quoting Trynke De Jong
Patricio Araneda
Thread initiator
Subspeciality
Reg:
10/17/2020 6:14:00 PM
Comment# 6
Opendataclinica is designed to be flexible and maintain many diverse registration lines and capacity for thousands of patients and registries.
The next step is the generation of interoperability with FHIR to access hospital records
Comment added on 11/17/2020 3:28:00 PM
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